Almost done

Tuesday, Oct. 21
We headed back to Childrens Hospital again for 2 appointments today.  At 9am, he had a physical therapy evaluation and at 10am, we had an appointment with the neurologist that would explain the EEG that he had on Friday.  We had to wake Arouna up at 6:45 to feed him and then get him in the car for the hour and 15 minute drive to the hospital.  It was early for him, but he didn't complain about it.  
He saw a physical therapist and intern and she evaluated did an evaluation on where he is mostly in motor skills like walking, sitting, crawling, etc.  They explained to me that physical therapy is more lower body skills and occupational therapy is more upper body skills and skills of taking care of yourself.  He has had both of these evaluations but we haven't received the results yet on them.  He also had a speech evaluation which he was placed between a 1 to 4 month old for speech.
At 10am, we went to the neurology appointment and met with a very good neurologist who explained his MRI very thoroughly and explained the EEG very thoroughly.  The EEG showed that he is having myoclonic seizures.  These are a type of seizure that usually happen during sleep or early in the mornings, but can happen throughout the day too, but are not as common then.  She explained that these type of seizures will not cause damage to the brain, but if not treated, he could have a full blown seizure that could cause more damage to his brain.  So the neurologist and our pediatrician feel that he needs to start a medication called Keppra to try and get rid of the seizures that he is having.  The medication is not at all dangerous and have few side effects, so we are going to give it a shot.
He only has one more appointment on Friday and unfortunately it is an exam that they have to put him to sleep again.  This test will determine if the nerve from the ear to the brain is damaged.  So we leave early Friday morning and can't feed him until it's all over.  Of course, I'm not looking forward to it, but it will be so good to have it all done.